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Health insurance claim denials and downcodes: What can I do?

(Note. I’m writing this mostly from a patient perspective, but it also applies to practitioners.)

What is a health insurance denial?

A denial is when the health insurance refuses to pay for a medical service or treatment that has been provided or requested.

Some reasons health insurance processors give for denials of bills and/or prior authorization requests:

  • A service isn’t covered by the plan
  • A service is said to be “not medically necessary”
  • A plan only covers “in-network” providers
  • Maximum plan coverage has been reached
  • Filing error
  • Coding or billing error

(Note. As an SLP, a frequent reason that prior authorization requests for a child’s speech-language therapy was denied by a private health insurance company was “This service is only covered in cases of accident, injury, stroke, or autism spectrum disorder”. Sometimes there was an addition allowing coverage for other congenital and/or genetic conditions.)

What is downcoding during claims processing?

The health insurance company changes a higher-level CPT (i.e., procedure) code (e.g., CPT 99214 indicating moderate complexity over 30 minutes) to a lower-level CPT code (e.g., 99213 indicating low complexity 20 minutes).

No matter in- or out-of-network it results in lower reimbursement as the lower code is associated with a lower payment amount.

An example from one of my out-of-network claims where my health insurance company used downcoding for a CPT code.

Column A = Billed Amount
Column B = Member Rate (nothing there because this is out-of-network)
Column C = Not payable by plan
Column D = Applied to deductible (I hit my out-of-network deductible early this year.)
Column E = My copay (does not apply to out-of-network)
Column F = Remaining amount (Amount billed – Notpayable)
Column G = Plan’s share (For me, this was 75% of the amount they deemed appropriate after downcoding)
Column H = My coinsurance (For me, this was 25% of the amount they deemed appropriate after downcoding)
Column I = My total share (Coinsurance + Not payable by plan)

You (and your practitioner if they are in-network) must watch your explanation of benefits for downcoding. This isn’t something they will tell you with a phone call or an email. It appears with those numbers referencing the reason which is at the bottom of the bill.

So if you see those numbers, look for a reason. If you are struggling to read the explanation of benefits, then ask a biller at your hospital, the specialist, or you could even email me.

Health insurance companies will say they do this to prevent upcoding by practitioners (which is fraud).

What do I do now?

  • Review the denial notification (These are not easy to understand for anyone – even some doctors can’t read an Explanation of Benefits. Ask for help from your provider, insurance company, a friend, me, anyone, if it’s confusing)
  • Contact your provider
  • Contact your insurance company.
    • Ask them why
    • Ask what can be done to correct the claim
    • Sometimes it is a simple processing error. (Once my annual woman’s exam was processed by my health insurance as if my husband was the patient, despite this clearly being inaccurate. It was reprocessed correctly without an appeal)
    • Other times the doctor didn’t provide enough information, or the insurance company needs to see case notes.
  • Gather the documents you need (medical records, test results, practitioner notes)
  • File the internal appeal: This information is on the explanation of benefits, and sometimes you can do this through your health insurance online portal.
    • If you need to fax the appeal, then keep a copy of the sent receipt. (I use e-fax.)
    • If you need to snail mail the appeal, then note the date and time you sent it or even send it certified mail return receipt. (I say this after having my private insurance claiming they did not receive documents multiple times.)
  • Learn about the appeal process:
    • DEADLINES are important (set calendar reminders, whatever you need to follow-up on these)
    • Know what to do next if the appeal is denied: Sometimes you file an external appeal, sometimes you have another level of internal appeal
  • If you are struggling with the process, then contact your State’s Insurance Department (often there is a regulatory body like an insurance bureau and a group that helps navigate appeals)

Why don’t people file appeals?

Gupta, Collins, Roy, and Masitha (2024) noted the following a Commonwealth Fund publication:

  • 45% of insured working-age adults received a medical bill or being charged a copay for a service they thought should be covered by health insurance
  • Of those, less than half of those reporting billing errors challenged them. The most common reason: Lack of awareness about their right to challenge a bill.
  • About 2 of 5 who challenged (i.e., appealed) their bill, reported it was reduced or eliminated by the insurance company.
  • 17% reported that their insurer denied coverage for care recommended by their doctor; more than half said neither they nor their doctor challenged the denial
  • About 6 of 10 adults who experienced a coverage denial also experienced delayed care

There are many issues cited in this report for how the complexity of health insurance in the United States has affected patients who struggle to understand what is and what isn’t covered and their financial liabilities.

Personally, even selecting a health plan each year is complicated by terms like the following:

  • HMO
  • PPO (but some of these are really HMOs pretending to be PPOs)
  • POS (point of service)
  • In-network deductible
  • Out-of-network deductible
  • In-network max out of pocket
  • Out-of-network max out of pocket
  • Wait! There’s more! Then you have 105% of the maximum allowed medicare rate for out-of-network
  • Then how much of the out-of-network bills go toward your deductibles? Does all that go toward the max out of pocket out-of-network? (You’d be surprised.)
  • Does the coverage change based on the service? (Yes.)
  • Do they change coverage based on the service provider? (i.e., facility vs. clinic)
  • Are there a maximum visits?
  • With my insurance cover allied health services (i.e., speech-language pathology, physical therapy, and occupational therapy)? How many visits per year? Are these capped individually or across services? Copay? Are there exclusions?

The list goes on…

What can I do if I lose the appeal at all the levels available?

If your plan is through your (or your spouse’s) employer: Explain the issue to HR at your company. There might be something in what they negotiated that could change the situation, or they could negotiated better benefits for the next plan year. Some employers even have support available for employees in these instances.

Advocate. You could also contact your State and Federal representatives to express your frustration regarding the situation and request a change to requirements for healthcare insurance that would prevent this from happening. This won’t take care of the current claim, but it might lead to change in the future.

Here are two TikToks from my personal experience navigating claims with my private insurer.

@omymanycats

Health insurance denials and claim mishandling are something I have experienced for years. These are merely a few. I wanted to get this out for the ABC News report that Dr. Glaucomflecken mentioned but it seems the account is gone.#healthinsurance #healthinsurancedenials #chronicillness #navigatinginsurance @Dr. Erin Nance 🇺🇸 @Dr. Rubin, MD @Dr. Glaucomflecken @ABC World News Tonight @Aaron Parnas @UnderTheDeskNews

♬ original sound – omymanycats
@omymanycats

It seems unethical for a claims processor who was not present during my medical appointment to recode CPT codes on my bills. It seems more egregious when I need to monitor them closely to ensure they reprocess the bill correctly up on me winning an appeal. And even moreso when they continue to do so after I’m told it was just human error. #healthinsurance #healthinsurancestruggles #appeal #claimprocessingerrors #chronicillness #chronicillnesstiktok #ishealthinsurancereallytheretohelp #spoonies

♬ original sound – omymanycats – omymanycats

Disclaimer. This article is based on research and personal experience. This information is not intended as legal advice or healthcare advice. It is informational.

Health insurance: Disparities in Billing and Claims Processing

What is disparity? “A noticeable and usually significant difference or dissimilarity”. Think income, education, race, and ethnicity.

Individuals with disabilities (including chronic health conditions, chronic diseases) are another group that might experience health disparity, but there is less research on this group. Krahn, Walker, and Correa-De-Araujo (2014) discuss the history and definitions of disability.

Disparities across income, education, race, and ethnicity

Hoagland, Yu, and Horny (2024) examined the association between patient demographics and insurance denials for preventive care among a cohort of 1,535,181 privately insured patients seeking preventive care in the US.

What preventive care was considered in this study? Contraceptive administration, breast cancer screening, cholesterol screening, colorectal cancer screening, depression screening, diabetes screening, and wellness visits.

Here is a summary of their findings:

  • Low-income patients, patients with a high school degree or less, and patients from minoritized racial and ethnic groups experienced higher rates of claim denials. Most frequently these were noncovered service-diagnosis code pairs and billing errors. (i.e., There are inequities to accessing basic preventive care based on patient demographics.)
    • The lowest income group (<$30,000 yearly) had 43% higher odds of any denial than those in the highest income group (benefit denials and billing errors; statistically significant).
    • Considering race and ethnicity, non-Hispanic black patients had 19% higher odds, Hispanic patients had 16% higher odds, and Asian patients had 54% higher odds of denials compared with non-Hispanic white patients.
    • Education differences were not statistically significant
  • How many bills were resubmitted by practitioners after a denial? Only 32.4% – denied claims had unpaid amounts (often left to patients 92.85% of the time with mean bills of $1395). This varied by patient income, race, and ethnicity.
    • Low-income patients had a higher burden than high-income patients (medians of $412 vs. $365, respectively)
    • Non-Hispanic black (median $390), Hispanic (median $464), and Asian (median $522) patients each facing higher costs than non-Hispanic White patients (median $357)
    • Smaller differences between less-educated patients (median $384) compared with those who had more education (median $399)

Financial burden for those with disabilities, chronic illness, and chronic disease

Note. I struggled to find research addressing this topic as a disparity, and I know I am not including everything out there. Please share any additional information with me.

Here is what I found in this brief review:

  • The more chronic conditions a person has is associated with an increased financial burden (i.e., increased debt, increased medical debt in collections, and increased out-of-pocket medical costs; Becker, Scott, Moniz, Carlton, & Ayanian, 2022)
  • Medical debt is associated with worse population health (i.e., more days or poor physical and mental health, loss of years of life, higher mortality rates for all; Han, Hu, & Zheng, 2024)
  • If you use health services more, then you’re more likely have a claim denied (Pollitz, Pestaina, Lopes, Wallace, & Lo, 2023)
    • Of the “high utilizers” (those with more than 10 provider visits in a year), 27% experienced a denied claim
    • Of the “moderate utilizers” (3-10 visits in a year), 21% experienced a denied claim
    • Of patients with less than 3 provider visits in a year, only 14% experienced a denied claim
  • Consequences of patients whose problems included denied claims (Pollitz, Pestaina, Lopes, Wallace, & Lo, 2023)
    • Delays receiving care/treatment (26% for those denied and 13% for those who were not)
    • Unable to receive medical care or treatment recommended by the medical provider (24% for those denied and 13% for those who were not)
    • Declined health (24% for those denied and 10% for those who were not)
    • Paid more for treatment or services than they expected to pay (55% for those denied and 16% for those who were not)
  • Pollitz, Pestaina, Lopes, Wallace, & Lo (2023) also noted the following about consumers with denied claims:
    • Most patients did not know they had appeal rights
    • Most (85%) do not file formal appeals (appeal rights vary based on coverage as do the rules; the process can be complicated)
    • Often those who need to appeal the health insurance decisions use a lot of health services, and may be too sick to advocate for themselves. (There are programs, Consumer Assistance Programs, available to help; however, they don’t exist in all states and Congress hasn’t appropriated funds since 2010.)

Han, Hu, Zheng, Shi, and Yabroff (2024) noted that policies increasing access to affordable health care could improve population health.

But implementing such policies will take time and working with both State and Federal elected officials.

What can you do in the in the meantime?

  • Monitor your medical bills
  • Know your rights
  • Ask questions
  • If you don’t understand something your provider puts on a bill OR your insurance company has on the “Explanation of Benefits”, then ask. (You can even ask me)

But please don’t ignore the error. And I understand how exhausting this is. It isn’t easy. It’s frustrating. It is disheartening. It’s overwhelming.